Data anonymisation

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Protect

Key legal and ethical considerations in creating shareable data. This chapter clarifies the different legal requirements of the European Union Member States, and the impact of the General Data Protection Regulation (GDPR) on research data management. It shows how sharing personal data can often be accomplished by using a combination of obtaining informed consent, data anonymisation and regulating data access. The supporting role of ethical review in managing legal and ethical obligations is also highlighted in this chapter.

Focus on:

  • legal and ethical obligations towards research participants and the different legal requirements of EU Member States
  • how protecting data properly protects against violating laws and promises made to participants
  • the General Data Protection Regulation and its relevance in research
  • informed consent, anonymisation and access controls to facilitate creating shareable data
  • relevant elements in a consent form
  • anonymisation techniques for quantitative and qualitative data
  • relevant DMP questions on these topics
Meeting funders’ requirements - archiving and data sharing

This introductory webinar is for anyone who is involved in the collection of data and is considering making (some of) their data available in accordance with funders’ requirements. More and more funders are requiring that research data be made available after completion of the research project, usually through the archiving of data in a trusted repository. However, research teams often still lack the appropriate skills and knowledge regarding how to properly prepare their data for archiving and sharing.

This webinar aims to raise awareness about relevant key data management practices for sharing, specifically regarding data documentation, gaining consent, and data anonymisation. Addressing each of these three topics, it provides a short theoretical introduction, including what FAIR means and how it is implemented, as well as practical illustrations drawing on a large-scale cross-national survey (the European Social Survey). It also provides some practical tips with respect to data archiving, in particular how to choose an appropriate archive or repository.

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UK Data Service: Manage Data

Online data management guidance and resources for researchers, developed by the UK Data Service. This resource provides best practice guidance and advice, including examples, exercises, tools and templates. The focus is on the social sciences and research with human participants. Particular areas covered are:

  • Data management planning
  • Legal and ethical aspects of managing and sharing data
  • IP Rights
  • Documenting data
  • Formatting data
  • Storing data

 

CESSDA Data Management Expert Guide

The Data Management Expert Guide is designed by European experts from the CESSDA Training Working Group to help social science researchers make their research data Findable, Accessible, Interoperable and Reusable (FAIR).

The guide is written for social science researchers who are in an early stage of practising research data management. With this guide, CESSDA wants to contribute to professionalism in data management and increase the value of research data.

The guide leads through the research data lifecycle from planning, organising, documenting, processing, storing and protecting data to sharing and publishing them. Taking the whole roundtrip will take approximately 15 hours.

Particular specialties of the guide is a focus on European diversity (for example in data protection legislation, research ethics, research funder DMP requirements, etc), developing a Data Management Plan as you progress through the guide, and topical expert tips.